Sep 24, 2019
As Chief Operating Officer for the world’s fifth largest biotech company, CSL, Paul McKenzie has strong insights on what the future holds for the industry, innovation, and how leaders can best work on behalf of patients around the world. On this episode of "World of Promise," he sits down with host Anthony Farina to...
Aug 20, 2019
In the United States, football season is about to get underway. But for rare disease researchers, there is no off season.
That’s why for Uplifting Athletes, raising awareness and funds in the fight against rare diseases is a year-round endeavor. Since the nonprofit organization consists of a national network...
Jun 18, 2019
On this episode of "World of Promise," host Anthony Farina talks to Tahirah Austin, who is living with Sickle Cell Disease, about the challenges she faces, and has faced, as a person with the condition. The episode also features a segment from an expert on Sickle Cell Disease, who offers some additional advice for...
May 21, 2019
When Jeffrey Modell continually begged his parents to “do something” about his Primary Immunodeficiency, it broke their hearts. But Vicki said that she and her husband, Fred, saw their son’s words as an “impassioned plea.” In 1987, one year after Jeffrey’s death, the Modells founded a foundation in their...
Apr 16, 2019
On this episode of "World of Promise," Dr. Andra James of Duke University School of Medicine discusses Von Willebrand Disease, how it affects women and girls, and the promise of biotechnology to improve the lives of people with bleeding disorders. This episode also features Mary Ann Massolio, who is living with Von...